Diet, News & Research, Resources, Treatment, Triggers

This Time Last Year, March 3-10

Posts from The Daily Headache, March 3-10, 2006

Nerve Stimulator-Imposed Restrictions
According to Medtronic’s Living Well newsletter, these activities might be harmful for people with nerve stimulators: using an electric blanket, skiing, sledding, golfing, amusement park rides. Would I have still gotten the implant if I knew about all these limitiations?

Woman Heartbroken After Ending Love Affair
After years of agony, I finally say goodbye to one of the great loves of my life.

Getting the Attention We Deserve
ABC News aired a piece on new treatments for migraine, the first of a three-part series on migraine. It appears to be a good step toward reducing the stigma of migraine.

Acupuncture & Birth Control Deja Vu
Results of new studies on these migraine topics were released.

Pain Resource: Doctors for Pain
Get a glimpse of this excellent website on treating and coping with chronic pain.

The Ultimate Question
I finally try to answer the question about my occipital nerve stimulator that I’m asked the most: How much does it help? Since I had my stimulator removed in September, this post now seems quaint.

News From Annual Pain Meeting
Studies discussed at the American Academy of Pain Medicine‘s meeting included nerve stimulation and opioid levels in the blood of chronic pain patients.

Coping, Triggers

Feeling Awful & Gaining Perspective

Tuesday’s exuberance did land me in bed on Wednesday, but I felt pretty good on Thursday and was able to enjoy the day. The pain came back after I got home on Friday and stuck with me through the weekend.

For peace of mind, I’m going to treat this as two separate headache events. I don’t want to believe that I paid for a great 16 hours with 72 hours of agony. Honestly, though, I would have paid that much for having such a good day.

What I hate is that I had looked forward to spending time with Hart over the weekend. Not only was I in pain and not up to leaving the house, I was grumpy. Every little thing sent me into a tailspin. Like the realization that I will probably never travel to Iceland because sulfur triggers headaches for both Hart and me. (This isn’t as esoteric as it seems — Iceland has been my dream destination for a few years.)

When we decided that traveling was much more important to than spending
our money on stuff, it felt like the world was open to us. To have an outside force decide for me that I can’t fulfill a dream angered me.

It didn’t take long remember that I’m lucky to even consider taking a trip there. Many people don’t get to travel at all. I still have a choice, even if I can’t go where I hoped to go. So my choices are narrowed by one country. Big deal.

While it sucks to be in pain all the time, I appreciate how often it encourages me to think of what I do have. Regular doses of perspective are a great benefit of having a chronic illness.

I haven’t been up to responding to comments or e-mail. Know that I haven’t forgotten you! I think I’ll be able to get to all of it by tomorrow night.

Triggers

Wild Goose Chase

Too much sun? A bad pillow? A sore neck? Broccoli? I thought I’d stopped obsessing over this. My first level 6 headache after a three week* respite came this afternoon and I’ve been trying like mad to pinpoint the trigger(s).

Usually I have fluctuations in pain throughout a day. Every day will have at least a level 3 and most days it’s higher than that. I can rarely identify a trigger, so I don’t bother. I just know that this is my version of normal.

The last few weeks the pain hasn’t been above a 3, with the majority of the time at a level 1 or 2. A new normal was established — not one that I thought would last, but I was eager to hang on to it nonetheless.

Now that the calm has been broken, I have to know why. My rational side knows that my brain has funky wiring; the desperate side of me wants to hunt down the evil offender and eradicate it.

Well, when I started writing this post that’s what I wanted to do. Now I’ll gladly call of the dogs if I can just go back to how I felt yesterday.

*Except for the days it was snowing in Seattle; if I began counting after those days I’d still be a two weeks of low head pain. While Sunday night’s pain was stabbing and throbbing, I don’t think it was worse than a 3. Or maybe it was and I’m just telling myself that recent weeks have been better than they actually were. . . .

Meds & Supplements, Treatment, Triggers

Cautiously Optimistic

Eliminating triggers, particularly food triggers, is the main headache treatment that all the naturopaths I’ve seen use. While effective for some, only about 25% of people with migraine have food triggers. In recent years, certain supplements — magnesium, riboflavin, coenzyme Q10 and feverfew — have also been added to the naturopaths’ arsenal.

To my immense relief, the naturopath I saw yesterday wanted to move beyond the obvious (and mostly ineffective for me) treatments. The first step is to equalize my elimination pathways. That’s all I’m going to tell you about my bowels, but I think you get the picture.

While I’m glad she wants to treat different pathways (a word she used at least 20 times), I am a little skeptical about her knowledge of and beliefs about migraine. She always referred to a problem, like toxicity in the body or postural alignment, as causing headaches. The cause of headaches is a neurological malfunction, everything else is a trigger.

Foods, stress, weather, toxic blood can all trigger a particular headache, but they are not the underlying cause of the headaches. If they were, it follows that anyone with one of these issues would have headache, particularly migraine in this case. But only people with a neurological predisposition to headaches will actually have them.

But since she’s working on other areas, I’m not too concerned about this. I’m also more lenient because the friend who recommended her will only see excellent health care providers. And this friend’s recommendations, from acupuncturist to general practitioner to restaurants, are always spot on.

Before I tell you about my treatment, a disclaimer is required. I’m not recommending that you take any particular product, nor do I work for any of these companies. Infomercials and the like are evil and do nothing to persuade me. The more hyped up a claim is, the more skeptical I am of it. But I’m willing to try anything that doesn’t harm my body.

My treatment includes a “greens drink,” which are said to “contain grasses, sprouted grains and green vegetables which infuse your body with easily absorbed vitamins, minerals and amino acids.” The website of the drink I’m using, Greens First, claims that “one serving of Greens First contains more phytonutrients (health promoting chemicals in plants) than ten servings of fruits and vegetables and much more!” In any case, it tastes good and doesn’t appear to be harmful so I’m trying it.

Next I’m taking a probiotic called “Fortefy.” The best description I can find of it is on a website selling the stuff: “. . . contains elite strains of friendly Lactobacillus and bifidobacterium. . . . Proprietary blend of 20 billion organisms: lactobacillus acidophillus, bifidobacterium bifidum, lactobacillus salivarius.” Funny how the description doesn’t explain the product.

The other two things are ones that I’ve taken off and on before, magnesium and fish oil. If you’re interested, I recommend Pharmax fish oil with orange essential oils. It is good mixed in a smoothie and doesn’t make you burp fish oil. Sorry to break my promises by recommending a specific product and also mentioning digestive functions, but the orange makes this oil far superior to any others I’ve tried.

These are on top of Migratrol and Gentiana Complex, which my acupuncturist (who is also a licensed Chinese herbal medicine practitioner) prescribed on Monday. Migratrol is self-explanatory, the connection between gentiana and headache is more complicated. The quick explanation is that a blockage of chi (energy) at the liver contributes to headaches.

The naturopath also recommended having my posture checked and having craniosacral therapy. I’ll probably check these out in the future, but I’m going to focus on acupuncture for now. If I’m shelling out lots of money for all this bodywork, I want to be able to figure out which ones are worth the cost.

I’ve gotten to the point that I know so much about headache and it’s characterization in western medicine that it’s easy for me to understand it in those terms. Even if I don’t understand something I know how to learn about it and which resources are accurate. With “alternative” medicine, I’ve been plunged into the deep end without knowing how to swim. Where are my water wings?

Coping, Resources, Society, Triggers

Good Stuff From ChronicBabe

ChronicBabe is always an awesome site; recently it’s been overflowing with terrific articles and links.

Illness and Empathy for Others
In her latest contribution to ChronicBabe, Laurie Edwards (whose articles I love) describes how her illness influences her interactions with loved ones when they have a passing illness — both positively and negatively.

Work and Illness
Lily Thomas, who has CDH and migraine, writes about working with people who don’t really understand what your illness is like. And her experience sorting it out when her boss was the one who didn’t understand.

Emotions in Patient-Doctor Communication
“Emotional patients” have trouble remembering what their doctors tell them, according to findings of a recent study. The “emotional” participants in the study latched onto frightening or worrying information.

Keeping Cool
Heat and dehydration are big headache triggers. ChronicBabe gave this link for ways to cool off.

Acceptance
In an essay on NPR‘s This I Believe, Kay Redfield Jamison writes about accepting the role of bipolar disorder in her life: “It is not a gentle or easy disease. And, yet, from it I have come to see how important a certain restlessness and discontent can be in one’s life; how important the jagged edges and pain can be in determining the course and force of one’s life.”

Invisible Chronic Illness
Next week is National Invisible Chronic Illness Awareness Week. During the week, people who live with invisible illnesses are encouraged to educate the “general public, churches, healthcare professionals and government officials” about the frustrations of having an illness that others can’t see.

Thanks to Jenni and all ChronicBabe contributors for sharing coping strategies and great resources.