Resources, Symptoms

Migraine’s Visual Aura & Hallucinations on the New York Times Migraine Blog

The deep explorations of visual aura and hallucinations in the two latest entries on the New York Times migraine blog provide education far beyond what most migraineurs encounter; including one who writes about headache disorders and migraines nearly every day (me!). Check out the following posts to expand your knowledge.

Patterns
Acclaimed writer and neurologist and migraineur Oliver Sacks explains the neurophysiology of visual auras and describes the patterns, or “geometric hallucinations,” some see during an aura. His intricate depiction is a fascinating eye-opener for those without aura and excellent information for those with it.

Lifting, Lights and Little People
Siri Hustvedt, author and migraineur, wrote of the hallucinations she has had with migraine episodes.

It is comforting to think that visual perception is a matter of taking in what’s out there, that a clear line exists between “seeing things” and the everyday experience of looking. In fact, this is not how normal vision works. Our minds are not passive containers of external reality or experience. Evidence suggests that what we see is a combination of sensory information coming in from the outside, which has been dynamically translated or decoded in our brains through both our expectations of what it is we are looking at and our human ability to create coherent images. We don’t just digest the world; we make it.

You can hear more from New York Times migraine bloggers Siri Hustvedt and Paula Kamen on NPR’s Talk of the Nation. Headache specialist and founder of the Michigan Headache and Neurological Institute Joel Saper weighed in and responded to callers’ questions. Congratulations to Migraine Blog, Migraine Chick and Somebody Heal Me for being mentioned on NPR’s website.

Books & Products, Coping, Favorites, Mental Health, Resources

Making Peace With Pain: Accepting Migraine and Chronic Daily Headache in My Life

Accepting that I may have a migraine or headache every day for the rest of my life is the most effective treatment I’ve had. But how did I get here and what does acceptance mean, exactly? Time. I know, not an encouraging answer, but where I am now is worth all the time it took to get here.

After my occipital nerve stimulator proved ineffective in January 2004, I was devastated. What I thought was my last chance at treatment had failed. Feeling like you have nothing left can suck you into a dark hole. It can also be the motivation necessary to claw back to an enjoyable life even if chronic daily headache and migraine are going to stick around. Most likely, it will be both.

For more than a year, I wrapped myself in the sadness and hopelessness that enveloped me. Mourning losses from my illness was necessary, but I wanted my life back. Even one full of pain and exhaustion was preferable to where I’d sunk. I was finally motivated to find a happier way to be.

Reading The Anatomy of Hope by Dr. Jerome Groopman played a crucial role. He writes: “Hope is the elevating feeling we experience when we see – in the mind’s eye – a path to a better future. Hope acknowledges the significant obstacles and deep pitfalls along that path. True hope has no room for delusion.”

Until then hope was believing I’d find a miracle treatment. Groopman taught me that hope is knowing a happy life is possible even with illness. Finding the joy in everyday life is far better than clinging to desperate desire for a magic cure.

Instant change didn’t follow my aha! moment, but put the process in gear. Now I have days where the thought “I love my life” jumps unbidden in my mind. That never would have happened four years ago. I still have plenty of days that are horrible, but hope lurks even on days I don’t think I can handle it anymore. When I feel OK, I really do try to seize the moment, as the cliche goes. Corny yet true.

The following books have helped me along:

  • The Anatomy of Hope by Jerome Groopman – The first time I read this, it was just an interesting collection of essays; the second time I “got it” and took the messages to heart. That was when I was first beginning to accept headaches as a permanent part of my life.
  • All in My Head by Paula Kamen – A memoir and great information source on chronic daily headache. She recommends Chronic Illness and the Twelve Steps by Martha Cleveland for accepting illness. (Kamen is also a contributor to the New York Times’ migraine blog.)
  • The Chronic Illness Workbook by Patricia Fennell – The same idea as the 12 steps book, but with less of a spiritual focus and is more methodical (for lack of a better word). I prefer this one.
  • Kitchen Table Wisdom by Rachel Naomi Remen – In the self-help/inspiration genre without being over the top pushy or mushy. The thoughts it provokes have been vital to my acceptance of illness. My copy currently has 14 bookmarks in it.
Community, Doctors, Meds & Supplements, News & Research, Patient Education, Resources, Treatment

Headache NewsBlog By Headache Specialist Alexander Mauskop

Alexander Mauskop, director of the New York Headache Center, regularly posts his thoughts on current headache news on the aptly named Headache NewsBlog. He dispels myths and examines closely media coverage of headache news. Here’s a taste of Mauskop’s blog, but look over Headache NewsBlog to get the full flavor.

Current News

Medications

Botox

Resources, Treatment

Alternative and Complementary Medicine: Evaluating Success Rates

Evaluating any medical claim carefully is crucial, no matter the source. With so many false or overblown claims about alternative and complementary treatments, I’m pretty skeptical. Alternative Medicine: Evaluate Claims of Treatment Success from the Mayo Clinic can help sort fact from fiction.

The section on avoiding internet misinformation is a must-read. Other topics in the article beware of health care scams and fraud, looking for solid scientific studies, evaluating providers and dietary supplements, and integrating Western medicine with complementary treatments.

Related articles from the Mayo Clinic include:

Coping, Mental Health, Resources, Treatment

Mayo Clinic on Depression

Depression is the focus of the latest Housecall, Mayo Clinic’s e-mail newsletter. The excellent information includes:

Also, Mayo’s depression section is a resource that everyone with depression must check out.