Community, Coping

Migraineurs, We Are Strong

There are several particularly horrible experiences in my time with chronic migraine that stand out vividly in my memory. Instead of pushing them down and trying to hide them away, I hold on tightly as a reminder of my incredible strength and fortitude. Read about those memories and the lessons they have taught me in Migraine Strength on Migraine.com, in which I say to all migraineurs currently in a place of despair,

…[P]lease believe that you are enormously brave for hanging in there. You are not weak because you are sick, but are instead stronger and more courageous than you can possibly imagine. Keep waking up each day and continue to try new treatments. You will eventually find relief.

Coping

Chronic Migraine, Loss, and Finding the Richness of Life Even With Chronic Illness

When my chronic migraine was at its worst, I did not feel like I was living a life, but was barely clinging on to survival. Now that I’m coming out of more than a decade of severe chronic migraine, I see not only how much I lost, but how full my life was despite the nearly constant severe, disabling migraine attacks. Read about in Coming to Terms With the Losses of Chronic Migraine on Migraine.com.

Coping, Society

Internalizing the Stigma of Migraine

The stigma of migraine and society’s perception of illness, as well as the internal voice that judges me during a migraine attack have all been swirling around in my mind lately. The topics came together in Internalizing the Stigma of Migraine, which quickly became my most popular post on Migraine.com. I’m both saddened by the number of people who identify with this experience and honored that I can give voice to the torrent of emotions that accompany migraine.

Here’s a short excerpt from Internalizing the Stigma of Migraine:

I have to wonder if I and so many other migraineurs berate ourselves not only because other people regularly distrust that migraine is a true physical illness, but because we have internalized those same doubts.

This is where the stigma of migraine is especially damaging. Dealing with people who don’t understand — and don’t seem to want to understand — what we’re going through is frustrating and infuriating. Believing it ourselves is way more harmful because it demoralizes us and causes us to question the legitimacy of our own experience.

Coping

Learning to Listen & Respond to Your Body’s Needs

I’ve done what journalists call burying the lede in this post. If you want get to the heart of body scans, skip on over to Learning to Listen to Your Body, my latest post on Migraine.com. To understand how listening to your body relates to your life, migraine, chronic illness, and society, keep reading.

Spending time with mothers of young children recently, I’ve been struck by how in tune they are with their children’s needs. Even though the child can’t speak, their mothers know that that a certain squirm means “let me down,” while another indicates a dirty diaper, that a particular squeak means the child is hungry.

Imagine being that in tune with your own body. Think how valuable that knowledge could mean for someone with migraine, whether episodic or chronic, or any other illness, for that matter. If you can identify early warning signs of an impending attack or downturn, you can take appropriate medications or avoid overtaxing yourself, resting when needed rather than only when you’re completely exhausted.

This knowledge is particularly valuable in migraine, since the first phase of an attack, called prodrome, causes physiological changes in the body that many of us are unaware of. Some people yawn a lot, feel tooth sensitivity, have a creative surge, get hyperexcited or depressed, or a host of other symptoms. Unless you’re aware of the minute changes in your body, you may not know a migraine is coming on before it whacks you over the head. Knowing your personal prodrome symptoms are crucial, since migraine abortive medications are more effective the earlier in an attack you can take them.

We are all capable of being as aware of our own bodies’ needs as a parent is of their child’s needs. Living in a culture that prizes busyness and activity over any downtime most of us have never learned how to listen to our bodies or take care of ourselves. When we get sick, we continue ignoring what our bodies have to say — sometimes as a coping mechanism, sometimes because that’s the only way we know how to function. We do so at our own peril and, I fear, ultimately worsen the symptoms of illness.

Fortunately, listening to our bodies is a skill we can learn, just as we can learn to play the piano or bake cookies. Meditating is one way I’ve learned to listen to my body. A body scan, which can be part of a meditation practice or done on its own, is an excellent, clear-cut method for learning to hear what your body is telling you. Learning to Listen to Your Body, my latest article for Migraine.com, walks you through a short body scan and recommends some resources for a guided body scan. Like mastering any skill, it takes practice, but the reward is worth the effort.

Chronic Migraine, Treatment

Just Another Lab Rat: My Experience With an Occipital Nerve Stimulator

I’ve never felt more like a guinea pig than I did when I had my occipital nerve stimulator implanted almost 10 years ago. Read about the experience, and my thoughts about it all these years later, in Migraine & “The Box” — Feeling Like a Guinea Pig With an Occipital Nerve Stimulator on Migraine.com.

The post is in response to the Migraine & Headache Awareness Month Blog Challenge question from June 12, What situation in your migraine/headache disorders treatment has made you feel most like a guinea pig or lab rat?